Directory of Genetic Disorders Resources

Home > Health > Support Groups > Conditions and Diseases > Genetic Disorders

Subcategories

• Beckwith-Wiedemann Syndrome
• Down Syndrome

Resources in This Category

• Alliance of Genetic Support Groups

  http://www.geneticalliance.org/
  National coalition of consumers, professionals, and genetic support groups to voice the common concerns of children, adults, and families living with, and at risk for, genetic conditions.

• Chromosome Disorder Outreach, Inc.

  http://www.chromodisorder.org/
  Non-profit patient advocacy organization. Support and information provided for those affected by rare chromosome disorder.

• Cornelia de Lange Syndrome (CdLS) Foundation Outreach

  http://www.cdlsusa.org/
  Family support organization which exists to ensure the early and accurate diagnosis of CdLS, promote research into the causes and manifestations of the syndrome, and help people with a diagnosis of CdLS, and others with similar characteristics, make informed decisions throughout their lifetime.

• S.O.F.T.

  http://www.soft.org.uk/
  A United Kingdom support organisation for parents of infants with Trisomy 13 and 18 and other related disorders.

• Support Organization for Trisomy 18, 13, and Related Disorders (SOFT)

  http://www.trisomy.org/
  Provides literature, conferences, newsletter, chapter information, and international contacts.

• Trisomy 18 Foundation

  http://www.trisomy18.org/
  Participate in this support group for those pregnant with, parenting, or grieving the loss of child with Trisomy 18. Includes resources for all stages of the journey.

• Unique Rare Chromosome Disorder Support Group

  http://www.rarechromo.org/
  Support and information for families of children with rare disorders.

• Yahoo Group - ATR-X

  http://health.groups.yahoo.com/group/atr-x/
  Offers support for individuals caring for others affected by Alpha Thalassemia Mental Retardation Syndrome.

• Yahoo Group - CMT Support

  http://health.groups.yahoo.com/group/CMT-Support/
  Message board concerning Charcot-Marie-Tooth Disease.

• Yahoo Group - Floating Harbor

  http://groups.yahoo.com/group/floating_harbor/
  Forum for the parents and families of children with Floating Harbor Syndrome.

• Yahoo Group - Myotonic Dystrophy 2

  http://groups.yahoo.com/group/MyotonicDystrophy2
  A forum for sharing information, increasing public awareness, and building advocacy for further research for patients diagnosed with Myotonic Dystrophy Type 2.

Related Categories

• Home > Health > Conditions and Diseases > Genetic Disorders

Other Languages

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