Directory of Support Groups Resources

Home > Health > Conditions and Diseases > Genetic Disorders > Beckwith-Wiedemann Syndrome > Support Groups

These groups, communities, or meeting places provide an opportunity for people with a common experience (such as a condition or disease, or a care-giving role) to share their concerns, and to seek and offer information and advice.

Resources in This Category

• Beckwith-Wiedemann Family Chat Forum

  http://health.groups.yahoo.com/group/bwschat/
  An international email discussion group promoting the exchange of Beckwith-Wiedemann Syndrome (BWS) related information and support.

• Beckwith-Wiedemann Syndrome Support Group

  http://www.bws-support.org.uk/
  UK group providing information on this condition, a letter from Dr Beckwith, stories, tips and details of new research.

• The Beckwith-Wiedemann Children's Association of New Zealand

  http://bwcanz.org/
  Charitable organization focused on providing support and information for families affected by Beckwith-Wiedemann Syndrome in New Zealand and world wide.

Related Categories

• Home > Health > Support Groups > Conditions and Diseases > Genetic Disorders

 

Home > Health > Conditions and Diseases > Genetic Disorders > Beckwith-Wiedemann Syndrome > Support Groups

 

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