Directory of Neurofibromatosis Resources

Home > Health > Conditions and Diseases > Neurological Disorders > Peripheral Nervous System > Neurofibromatosis

Subcategories

• Acoustic Neuroma
• Malignant Peripheral Nerve Sheath Tumors

Resources in This Category

• British Columbia Neurofibromatosis Foundation

  http://www.bcnf.bc.ca/
  BCNF is a membership driven organization, which empowers individuals with NF and their families to reach their full potential by providing support, education and research funding.

• Neurofibromatosis

  http://www.ninds.nih.gov/disorders/neurofibromatosis/neurofibromatosis.htm
  Information page compiled by NINDS, the National Institute of Neurological Disorders and Stroke.

• Neurofibromatosis Cafe

  http://www.reggiebibbs.com/
  NF patient, Reggie Bibbs, presents the personal aspects of living with neurofibromatosis including news, events, blog, live chat, photographs and videos.

• Neurofibromatosis Clinics Association, Inc.

  http://www.nfpittsburgh.org/
  A non-profit organization for people with NF and their families.

• Neurofibromatosis, Inc.

  http://www.nfinc.org/
  Support and information for those with Neurofibromatosis.

• NF2Crew

  http://nf2crew.org/
  On-line discussion group for people with neurofibromatosis 2.

• NHS Choices: Neurofibromatosis

  http://www.nhs.uk/conditions/Neurofibromatosis/
  Provides information on this genetic disorder that affects the nervous system and the skin. Includes details of symptoms, causes, diagnosis, treatment and complications.

• Patient UK: Neurofibromatosis

  http://www.patient.co.uk/doctor/Neurofibromatosis.htm
  Factsheet on this condition, including its epidemiology, presentation, features, problems, investigations, differential management, prognosis and prevention.

• Texas Neurofibromatosis Foundation

  http://www.texasnf.org/
  Includes a list of events, fundraisers and outreach programs, as well as background information on the disease, and links to related resources.

• The Children's Tumor Foundation

  http://www.ctf.org/
  Dedicated to improving the health and well being of individuals and families affected by the neurofibromatosis (NF).

• Understanding Neurofibromatosis

  http://www.uchospitals.edu/peds-neurology/neurofibromatosis/
  This information will explain what NF is, what causes NF, what your family will need to do about it, and who can help you. From the University of Chicago Comer Children's Hospital.

• What makes a disability hate crime?

  http://www.bbc.co.uk/news/blogs-ouch-33623011
  The BBC reports that people stare at Adam Pearson wherever he goes. But when looks and whispers turn more violent, he’s left feeling scared.

Related Categories

• Home > Health > Conditions and Diseases > Genetic Disorders
• Home > Health > Conditions and Diseases > Rare Disorders
• Home > Health > Conditions and Diseases > Neurological Disorders > Neoplasms

Other Languages

• Catalan
• German
• Japanese
• French

 

Home > Health > Conditions and Diseases > Neurological Disorders > Peripheral Nervous System > Neurofibromatosis

 

---

 

Thanks to DMOZ, which built a great web directory for nearly two decades and freely shared it with the web. About us