Home > Regional > Europe > United Kingdom > Health > Support Groups
http://www.bws-support.org.uk/
Group providing information on this condition, a letter from Dr Beckwith, stories, tips and details of new research.
http://www.porphyria.org.uk/
Support organisation for people with any of the seven variants of porphyria.
http://www.cah.org.uk/
Provides support for those with CAH, as well as their families, and raises funds for research. FAQs, information pack, publications, events, and stories.
http://uk.groups.yahoo.com/group/Cushings/
UK forum for those with 'Cushing's Syndrome' - a hormonal disorder caused by prolonged exposure to high levels of the hormone cortisol. Yahoo! registration required.
http://www.edmesh.org.uk/
Edinburgh-based ME Self Help Group (MESH) for those with ME, as well as their families and carers. Events, meetings, postal library service, quarterly newsletter, plus forum and members-only pages.
http://www.bipolar-foundation.org/
An independent, international, non-governmental organisation dedicated to improving treatment and understanding of the causes and effects of bipolar disorder ('manic-depression').
http://www.headlines.org.uk/
Craniofacial support group in the UK for conditions associated with craniosynostosis. Includes details of the newsletter, events, fundraising and resources.
http://www.hopskipandjump.org.uk/
Bristol-based day care and supervised play for children with special needs and their families. Includes facilities - serves all of South West England.
http://www.jonnykennedynortheast.org.uk/
Providing support for Epidermolysis Bullosa sufferers and their carers. News, events and community forum
http://www.sibs.org.uk/
Support for brothers and sisters of those with special needs, disabilities or chronic illness. Fact sheets, workshops and conferences, plus training for professionals.
http://www.sueryder.org/
Charity to support people with disabilities and life-shortening diseases, their families, carers and friends, offing care at home or in residential centres. Information on its services and chain of shops.
http://www.mentalhealth.org.uk/
Charity improving the lives of those with mental health problems or learning disabilities. Research, service development and information to increase understanding.
http://www.verity-pcos.org.uk/
For women whose lives are affected by Polycystic Ovary Syndrome. Events diary, facts-sheets, web-links and discussion forum.
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