Directory of Facial Differences Resources

Home > Health > Support Groups > Conditions and Diseases > Facial Differences

Subcategories

• Apert Syndrome
• Cleft Lip and Palate
• Craniosynostosis
• Langer-Giedion Syndrome
• Parry-Rombergs Syndrome
• Smith-Magenis Syndrome
• Stickler's Syndrome
• Treacher Collins Syndrome

Resources in This Category

• AboutFace

  http://www.aboutfaceinternational.org/
  International organization providing information and emotional support to individuals and their families affected by facial differences and disfigurements.

• Acne Support Group in Cyberspace

  http://asgic.proboards.com/
  Support group and forum for anyone with acne to visit, discuss, share treatments, provide support and move through the stressful event of having acne.

• Birthmark Support Group

  http://www.birthmarksupportgroup.org.uk/
  UK-based charitable organization provides information about birthmarks, how to get help, treatment centres, newsletters, diary of events and links to other associated support groups.

• Changing Faces

  http://www.changingfaces.org.uk/
  UK charity that supports, represents and campaigns for people who have disfigurements of the face or body.

• Children's Craniofacial Association

  http://www.ccakids.com/
  Dedicated to improving the quality of life for facially disfigured children and their families; addresses the medical, financial, psychosocial, emotional, and educational concerns relating to craniofacial conditions.

• FACES: The National Craniofacial Association

  http://www.faces-cranio.org/
  Support and resources concerning craniofacial disorders including information on 28 specific craniofacial disorders. Financial assistance for secondary costs. USA based organization.

• Foundation for Faces of Children

  http://www.facesofchildren.org/
  Expert information for families and health care professionals about craniofacial conditions.

• Goldenhar Family Support Group

  http://www.goldenhar.org.uk/
  Aims to support families throughout the UK who face the day to day challenges of supporting relatives with Goldenhar Syndrome and related problems.

• Headlines

  http://www.headlines.org.uk/
  Craniofacial support group in the UK for conditions associated with craniosynostosis. Includes details of the newsletter, events, fundraising and resources.

• Johns Hopkins Center for Craniofacial Development and Disorders

  http://www.hopkinsmedicine.org/craniofacial/
  Provides information on research, education and clinical care for researchers and physicians. An educational interactive resource for families. Details of activities at the Center.

• Moebius Syndrome Foundation

  http://www.moebiussyndrome.com/
  Non-profit organisation that aims to provide information and support to individuals with Moebius syndrome and their families. Includes resources, news and articles and information on support groups, events and research.

• Support Works Online

  http://www.supportworks.org/cat806.htm
  Resources to find or form support groups related to facial difference. Information on medical research.

• The AmeriFace Circle of Smiles

  http://www.webring.com/t/The-AmeriFace-Circle-of-Smiles
  Webring community for families whose lives have been touched by cleft lip and palate and other craniofacial anomalies.

• The Craniofacial Society of Great Britain and Ireland

  http://www.craniofacialsociety.org.uk/
  Information about the society, which is a multidisciplinary forum for specialists.

• The Facial Pain Association

  http://www.fpa-support.org/
  Aims to serve as an advocate for patients living with trigeminal neuralgia and related facial pain conditions by providing information, encouraging research and offering support.

• The Personal Side of Craniofacial Differences

  http://members.tripod.com/~Craniofacial/index.html
  Personal accounts of living with craniofacial conditions, and related webrings.

• TRPS Support Group UK

  http://trpsuk.org/
  Provides information and support to those with trichorhinophalangeal syndrome and their families. Includes information on the condition, patients’ stories and a forum.

• XP Support Group

  http://xpsupportgroup.org.uk/
  UK-based organisation giving support, help and information to those affected by xeroderma pigmentosum and other photosensitive conditions.

• Yayasan Senyum: The Smile Foundation

  http://www.senyumbali.org/
  Non-profit organization supporting the delivery of health care to people with craniofacial disabilities, in particular children with cleft lip and palate in Bali, Lombok, Java and other areas of Indonesia.

Related Categories

• Home > Health > Conditions and Diseases > Congenital Anomalies > Craniofacial Anomalies

 

Home > Health > Support Groups > Conditions and Diseases > Facial Differences

 

---

 

Thanks to DMOZ, which built a great web directory for nearly two decades and freely shared it with the web. About us