Directory of Trichothiodystrophy Resources

Home > Health > Conditions and Diseases > Skin Disorders > Trichothiodystrophy

Trichothiodystrophy (TTD) is a rare genetic disorder that involves the production of abnormal brittle hair, Icthyosis, physical and developmental disorders. It can also involve ataxia, stunted growth, skin sensitivity to light, and to UV rays.

Resources in This Category

• A Parent's Account of Trichoththiodystrophy

  http://www.vp-it.com.au/sammyjoe/
  A personal account from a family in Australia about Sammy-Joe, who was born with this disorder. Contains an online journal and links to related sites.

• Hair Shaft Defects - Trichothiodystrophy

  http://www.keratin.com/ag/ag013.shtml
  Hair and hair disease information with answers to common questions, treatment details, book reviews, web links.

• Jeans for Genes Day

  http://www.jeansforgenesday.org/
  Australian member of parliament, Maria Vamvakinou, announces a day to promote awareness of genetic disorders.

• Trichothiodystrophy - Doctor Alfredo Rossi and Doctor C. Cantisani

  http://www.orpha.net/data/patho/GB/uk-trichothiodystrophy.pdf
  A short technical document discussing the condition. Contains enlarged photographs of damaged hair shafts, and references to other medical papers.

• Yahoo! Groups : Trichothiodystrophy

  http://health.groups.yahoo.com/group/Trichothiodystrophy/
  Uniting parents and individuals whose loved ones have the Trichothiodystrophy Syndrome.

• Yahoo! Groups : Trichothiodystrophy Family Contact

  http://health.groups.yahoo.com/group/TTD-support/
  For families as well as patients who are looking for information, contact and support for people living and dealing with trichothiodystrophy.

Related Categories

• Home > Health > Conditions and Diseases > Skin Disorders > Xeroderma Pigmentosum
• Home > Health > Conditions and Diseases > Rare Disorders
• Home > Health > Conditions and Diseases > Genetic Disorders

 

Home > Health > Conditions and Diseases > Skin Disorders > Trichothiodystrophy

 

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