Directory of Epidermolysis Bullosa Resources

Home > Health > Conditions and Diseases > Skin Disorders > Epidermolysis Bullosa

Epidermolysis Bullosa is a genetic disorder characterized by a fragility of the epidermis or skin, causing blistering, scarring, and sometimes death.

Subcategories

• Personal Pages

Resources in This Category

• Cristina's Castle in the Clouds

  http://cristinascastle.homestead.com/
  Information and support for those interested in a skin disorder called epidermolysis bullosa. Message board and also a list of camps for children with this disorder.

• DebRA Canada

  http://www.debracanada.org/
  Includes articles, news, and information about this genetic disorder.

• DebRA International

  http://www.debra-international.org/
  Dystrophic Epidermolysis Bullosa Research Association. A voluntary, non-profit organization dedicated to creating awareness and providing support for families affected by Epidermolysis Bullosa (EB). Includes treatment and care information, latest research, organization history, and forums.

• DebRA of America

  http://www.debra.org/
  Offers information, news, newsletters, support, and resources.

• DebRA UK

  http://www.debra.org.uk/
  Features organization background, information about the disorder, fundraising and research details, and news.

• EB Info World

  http://www.ebinfoworld.com/
  Information, mailing list, pictures, and help for new parents.

• EB Medical Research Foundation

  http://www.ebkids.org/
  A volunteer, nonprofit foundation dedicated to the support of medical research about this disorder. Includes information about research, videos, and organization information.

• The girl whose skin never heals

  http://www.bbc.co.uk/news/health-24902658
  The BBC reports on Sohana Collins, who has never known a day without pain. She has a rare genetic disorder that means her skin, internal and external, blisters and tears at the slightest friction.

• Yahoo! Groups: EBworld

  http://health.groups.yahoo.com/group/EBworld/
  Mailing list support group for parents, patients, and those interested in learning about disease.

• ‘Butterfly’ Churchill brothers die of infections

  http://www.bbc.co.uk/news/uk-england-dorset-21828145
  The BBC reports on the death of two brothers with ‘butterfly skin’.

Related Categories

• Home > Health > Conditions and Diseases > Genetic Disorders

 

Home > Health > Conditions and Diseases > Skin Disorders > Epidermolysis Bullosa

 

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