Directory of Porphyrias Resources

The result of changes in the blood's nitrogen-containing substances, or porphyrins.

Resources in This Category

Acute Intermittent Porphyria Forum

http://members.tripod.com/~theaipforum/
Information and links about Porph. Includes registration form for an email list.
British Porphyria Association

http://www.porphyria.org.uk/
UK support organisation for people with any of the seven variants of porphyria.
EPP

http://members.tripod.com/~Alzuko/epp.htm
Short for Erythropoetic ProtoPorhyria, which is a rare metabolic disease. A personal site about this disorder, one of the family of porphyrias.
European Porphyria Network

http://porphyria.eu/
The mission is to present an up to date approach to the understanding of porphyria.
King George III: Mad or misunderstood?

http://news.bbc.co.uk/2/hi/health/3889903.stm
The BBC reports on whether King George III had porphyria.
Porphgroup

http://groups.yahoo.com/group/porphgroup/
An e-mail group at Yahoo dealing with the metabolic disease porphyria.
Porphyria

http://www.thedoctorsdoctor.com/diseases/porphyria.htm
A look at the different types of these disease and some of their characteristics.
Porphyria

http://groups.yahoo.com/group/porphyria/
From Yahoo Groups. E-mail list for people with Porphyria. Friends, families and care givers are welcome.
Porphyria: The Unknown Disease

http://members.tripod.com/~PorphBook/
Genetic metabolic disorder. Overview of types, testing and diagnosis, and links.

Thanks to DMOZ, which built a great web directory for nearly two decades and freely shared it with the web. About us