Directory of Cystinosis Resources

Cystinosis is a rare genetic disease affecting both children and adults.

Resources in This Category

Cornea and External Diseases - Cystinosis

http://dro.hs.columbia.edu/cystinosis.htm
Features photographs of an affected eye, information on clinical features and treatment.
Cystinosis Research Foundation

http://www.cystinosisresearch.org/
Natalie's Wish is a non-profit organization. Their mission is to fund research to find better medications and ultimately a cure for this condition.
Cystinosis Research Network

http://www.cystinosis.org/
Information about the organization and their mission. Includes database about the disease as well as support groups, research and links to other resources.
EyeRounds.org: Cystinosis

http://webeye.ophth.uiowa.edu/eyeforum/cases/case4.htm
Doctors Andrew Doan and Andrew Lee describe the diagnosis of a young girl with the condition. Features information on the epidemiology, signs, symptoms and prescribed treatment.
The Cystinosis Foundation UK

http://www.cystinosis.org.uk/
Charity dedicated to assisting those with Cystinosis, their families, medical researchers and increasing the awareness of this condition.

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