Directory of Amyloidosis Resources

Home > Health > Conditions and Diseases > Nutritional and Metabolic Disorders > Inherited > Amyloidosis

Amyloid (pronounced am'-i-loyd) is an abnormal protein that may be deposited in any of your body's tissues or organs. This abnormal protein comes from cells in your bone marrow. The disease known as amyloidosis (pronounced am-i-loy-do'-sis) results when enough amyloid protein builds up in one or more organs to cause the organ(s) to malfunction. The heart, kidneys, nervous system and gastro-intestinal tract are most often affected. From the Mayo Clinic Rochester

Resources in This Category

• Amyloid Treatment and Research Program

  http://www.bu.edu/amyloid/
  Contains information about the program, personnel, publications, how to send biopsy material, and how to get to the Boston Medical Center.

• Amyloidosis Support Groups

  http://www.amyloidosissupport.org/
  US based, non-profit organization; find out about ASG and its services including newsletters, patient and care giver resources, and fundraising events.

• Amyloidosis Support Network

  http://amyloidosis.org/
  Provide complete, integrated, easy-to-reach support and information to existing information and referrals for other sources of help. Primarily for patients and their families struggling with the disease.

• Hunstein: EGCG

  http://www.hunstein-egcg.de/
  Prof. Dr. Werner Hunstein provides information on his personal experience of treating AL amyloidosis with Epigallocatechin-gallat (EGCG) from green tea.

• Indiana University Amyloid Research and Treatment Center

  http://www.iupui.edu/~amyloid
  This site defines amyloidosis and describes current research as well as treatment options. It also introduces the personnel and facilities of the center.

• MedicineNet: Amyloidosis

  http://www.medicinenet.com/amyloidosis/article.htm
  Provides a definition of this condition, symptoms, diagnosis, and treatment.

• NORD: Amyloidosis

  http://www.rarediseases.org/search/rdbdetail_abstract.html?disname=Amyloidosis
  A list of alternative names and a general discussion about this disease.

• Peripheral Neuropathy and Amyloidosis

  http://www.medhelp.org/perl6/neuro/archive/10656.html
  Ask the doctor medical forum for patients hosted by Med Help.

• Symptoms of Amyloidosis

  http://www.medhelp.org/perl6/neuro/archive/4773.html
  Ask the doctor medical forum for patients hosted by Med Help. A brief look at this disease and the symptoms.

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• Home > Health > Conditions and Diseases > Chronic Illness

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