Directory of Tuberous Sclerosis Resources

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Resources in This Category

• Kolten's Tuberous Sclerosis Page

  http://www.kolten.homestead.com/Kolten.html
  Describes his seizures and surgery.

• Matthew's Site for Tuberous Sclerosis Awareness

  http://www.angelfire.com/la3/tsc/
  Personal journal of a mother focused on her son's rare genetic disorder, which causes tumors in multiple parts of the body and causes neurological symptoms. Includes patient stories.

• MedlinePlus: Tuberous Sclerosis

  https://medlineplus.gov/tuberoussclerosis.html
  A list of synonyms, a summary and major features.

• NHS Choices: Tuberous Sclerosis

  http://www.nhs.uk/conditions/Tuberous-sclerosis/
  Provides information on this rare genetic condition. Includes details of symptoms, causes, diagnosis and treatment.

• NORD: Tuberous Sclerosis

  http://www.rarediseases.org/search/rdbdetail_abstract.html?disname=Tuberous+Sclerosis
  Offers alternative names, a general discussion and further resources.

• Tuberous Sclerosis

  http://www.ninds.nih.gov/disorders/tuberous_sclerosis/tuberous_sclerosis.htm
  A short information sheet on this disease compiled by NINDS, the National Institute of Neurological Disorders and Stroke.

• Tuberous Sclerosis - Lisa's Site

  http://www.title14.com/ts/
  An incurable genetic condition that causes tumors to grow in various places in the body.

• Tuberous Sclerosis Alliance

  http://www.tsalliance.org/
  US advocacy and support organization provides information about tuberous sclerosis complex, research on its genetics and treatment, and support for patients and their families.

• Tuberous Sclerosis Association

  http://www.tuberous-sclerosis.org/
  UK charity supporting sufferers, promoting awareness, and seeking the causes and best possible management of this genetic disease. Resources for patient families and information on this condition.

• Tuberous Sclerosis Fact Sheet

  http://www.ninds.nih.gov/disorders/tuberous_sclerosis/detail_tuberous_sclerosis.htm
  Developed by the National Institute of Neurological Disorders and Stroke (NINDS).

Related Categories

• Home > Health > Conditions and Diseases > Genetic Disorders
• Home > Health > Conditions and Diseases > Rare Disorders

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