Directory of Support Groups Resources

Home > Health > Conditions and Diseases > Neurological Disorders > Congenital Anomalies > Holoprosencephaly > Support Groups

This category contains information on Holoprosencephaly, a congenital malformation of the brain, characterised by various degrees of incomplete lobation of the brain hemispheres. Holoprosencephaly (HPE) is also known as Arhinencephaly. Sites listed here will represent support groups with a physical address or meeting place(s), or who offer internet-based support. If the community exists only on the internet, the group should be moderated by an expert in support. Submissions by registered support charities are welcomed.

Resources in This Category

• Yahoo! Groups: Ausholoprosencephaly

  http://groups.yahoo.com/group/ausholoprosencephaly
  Support group for parents and families of children with holoprosencephaly within Australia.

• Yahoo! Groups: Holoprosencephaly

  http://health.groups.yahoo.com/group/holoprosencephaly/
  Support group for parents and families affected by HPE.

• Yahoo! Groups: HPElosssupport

  http://health.groups.yahoo.com/group/HPElosssupport/
  For parents and families who have lost children to Holoprosencephaly.

Related Categories

• Home > Health > Reproductive Health > Pregnancy and Birth > Complications > Support Groups

 

Home > Health > Conditions and Diseases > Neurological Disorders > Congenital Anomalies > Holoprosencephaly > Support Groups

 

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