Directory of Anencephaly Resources

Sites concerning Anencephaly.

Resources in This Category

Anencephaly Awareness

http://www.angelfire.com/mb/jessicasjourney/info.html
Information including possible causes and future prevention. Also a personal story.
Anencephaly Information

http://www.anencephalie-info.org/
Personal stories, photos, tips for creating memories, advice on taking photographs, and tips for midwives. [Information in English, German, French, Dutch, Spanish, Portuguese and Italian.]
Anencephaly Net

http://www.anencephaly.net/
An internet hub providing facts about anencephaly. Includes fact sheets and links for pre-natal support, information, policy, grief support, and memorial sites.
Faith Aminah Shabazz

http://faithaminah.tripod.com/
Personal story after a diagnosis of anencephaly while still in the womb. Faith was born in March 2001 and lived until October 2003.
Moral Principles Concerning Infants with Anencephaly

http://www.ewtn.com/library/PROLIFE/bcdanen1.htm
Notes from Committee on Doctrine National Conference of Catholic Bishops (U.S.).
NINDS: Anencephaly

http://www.ninds.nih.gov/disorders/anencephaly/anencephaly.htm
Information sheet compiled by the National Institute of Neurological Disorders and Stroke.
Yahoo! Groups: Anencephaly

http://groups.yahoo.com/group/anencephaly/
Global Health Network support group open to anyone affected by anencephaly.

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