Directory of Organizations Resources

Home > Health > Conditions and Diseases > Neurological Disorders > Chronic Fatigue Syndrome > Organizations

Subcategories

• Support Groups

Resources in This Category

• Alison Hunter Memorial Foundation

  http://www.ahmf.org/
  Myalgic encephalopathy and chronic fatigue syndrome information for patients and medical professionals.

• Association of Young People with ME

  http://www.ayme.org.uk/
  Includes phone helpline, assistance with study problems, and guide to request a disabled students allowance. A UK-based charity.

• CFIDS Association of America

  http://www.cfids.org/
  Funds research studies towards accurate diagnosis and treatment. Also offers support and advocacy resources, including a grassroots on-line action center.

• CFIDS/Fibromyalgia Self-Help

  http://www.cfidsselfhelp.org/
  American non-profit organization that provides online self-management courses. Also furnishes a library of articles on coping, pacing, stress management and treatment.

• FM-CFS Canada

  http://fm-cfs.ca/
  National registered-charity that provides guides for doctors and pharmacists, nursing, assessment and treatment of patients, and guidelines for support groups.

• Hummingbirds Foundation for ME

  http://www.hfme.org/
  Provides an overview of known medical facts, diagnosis and basic treatment, comprehensive symptom list, research and advocacy information, and a monthly newsletter

• Invest in ME

  http://www.investinme.org/
  Independent UK charity campaigning for biomedical research. Offers conference reports, research news, media corner, and guestbook.

• Massachusetts CFIDS/FM Association

  http://www.masscfids.org/
  Articles on diagnosis, coping, advocacy, treatment, and disability. Assists patients with referrals to health care providers and gives guidance on disability issues.

• ME Association of Ontario

  http://www.meao.ca/
  Canadian charity that offers info, tips, and support to those coping with CFS and related illnesses, including youth and parents.

• ME Research UK

  http://www.meresearch.org.uk/
  National charity that funds scientific investigation into causes and treatment. Offers educational literature, reports of conferences and workshops, and a bi-annual magazine.

• ME/CFS Society of NSW

  http://www.me-cfs.org.au/
  Australian registered charity that provides information and support to sufferers and their carers. Features support groups, brochures and fact sheets, forum, and newsletter.

• National CFIDS Foundation

  http://www.ncf-net.org/
  American non-profit that funds research and provides information, education, and support to patients.

• National ME/FM Action Network

  http://www.mefmaction.com/
  Includes a quarterly newsletter, online library of articles, list of support groups, and discusses active projects. A Canadian registered charity.

• Pandora

  http://www.pandoraorg.net/
  American patient advocacy group for CFS and other neuroendocrineimmune disorders. Provides scientific articles, support and educational resources, newsletters.

• Sussex ME/CFS Society

  http://www.measussex.org.uk/
  UK registered charity offering support through newsletters, meetings, and telephone contacts to patients in East Sussex, West Sussex, and Kent.

• The ME Association

  http://www.meassociation.org.uk/
  Practical help is offered by this UK national charity, including information on benefits and other sources of assistance.

• Waterloo Wellington ME Association

  http://www.wwmea.ca/
  Canadian registered charity offering coping and self-help strategies, and help with finding a physician.

• Wisconsin ME/CFS Association

  http://www.wicfs-me.org/
  Online library with medical articles and resources for children. Access to support groups, phone support and their quarterly newsletter is for members only.

Related Categories

• Home > Health > Conditions and Diseases > Musculoskeletal Disorders > Connective Tissue > Fibromyalgia > Organizations

 

Home > Health > Conditions and Diseases > Neurological Disorders > Chronic Fatigue Syndrome > Organizations

 

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