Directory of Sotos Syndrome Resources

A rare genetic disorder characterized by excessive physical growth during the first 2 to 3 years of life.

Resources in This Category

GeneReviews: Sotos Syndrome

http://www.ncbi.nlm.nih.gov/books/NBK1479/
Summary, diagnosis, clinical description, differential diagnosis, management, genetic counseling and molecular genetics.
Genetics Home Reference: Sotos Syndrome

http://ghr.nlm.nih.gov/condition/sotos-syndrome
Includes a description and information on the genetics of this disorder, its inheritance and treatment, with links to other resources.
Sotos Syndrome

http://www.ninds.nih.gov/disorders/sotos/sotos.htm
Also known as cerebral gigantism, an information sheet compiled by NINDS.
Sotos Syndrome Support Association

http://www.sotossyndrome.org/
Online community for the education of professionals and families and to exchange ideas, gather research and help families to cope. Quarterly newsletters, reference library, annual meetings, and conferences are available to members and professionals.
Sotos Syndrome Support Association of Canada

http://www.sssac.com/
Provides educational and emotional support, and current information. English and French.

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