Directory of Post Polio Syndrome Resources

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For information about Post Polio Syndrome (PPS) relating to the medical symptoms, health concerns, mental stress, or methods to help the individual deal with all aspects of Polio and Post Polio Syndrome. The term Post-Polio Syndrome is not universal. Some prefer Late Effects of Polio, Post-Polio Sequelae or Post-Polio Myopathy.

Resources in This Category

• British Polio Fellowship

  http://www.britishpolio.org.uk/
  Information about this British PPS support group. PPS questions and answers, publications, library, news and message board.

• Gazette International Networking Institute (GINI)

  http://www.post-polio.org/
  Coordinator of International Polio Network (IPN) and International Ventilator Users Network (IVUN), collects, creates, and disseminates information for people with disabilities, specifically polio survivors and ventilator users. Information includes newsletters, directories, and books about independent living, home mechanical ventilation, and the late effects of poliomyelitis.

• Greater Boston Post-Polio Association

  http://gbppa.org/
  Support and selected resources for polio survivors now experiencing the effects of post-polio syndrome, plus information on several Massachusetts PPS support groups.

• How to Prevent Further Disability In Polio Survivors - Silver 1999

  http://www.skally.net/ppsc/silver2.html
  PPS expert lists things to do and not to do.

• New Jersey Polio Network

  http://njpolio.org/
  Information and news of interest to polio survivors, their families, and the healthcare community. Links, local chapters, newsletter and conference updates, advocacy.

• NINDS Post-Polio Syndrome Information Page

  http://www.ninds.nih.gov/disorders/post_polio/post_polio.htm
  Post-polio syndrome information page compiled by the National Institute of Neurological Disorders and Stroke.

• Polio Survivors of the 21st Century

  http://www.survivorsofpolio.com/
  Features a not for profit polio survivor website and support forum.

• Post Polio Awareness Support Society Minnesota

  http://www.ppassmn.org/
  State wide group of Polio survivors organized to assist other survivors.

• Post Polio Syndrome Forum

  http://forums.delphiforums.com/bigcrusher/start
  A web discussion forum for people who have or think they have Post Polio Syndrome. A forum where all are welcome, and to share experiences pertaining to their PPS disability.

• Post-Polio Syndrome Central

  http://www.skally.net/ppsc/
  A listing of PPS [postpolio, post polio syndrome] internet resources, original papers, surveys and polls.

• Post-Polio-Med Email List

  http://www.skally.net/ppmed/
  Forum for researchers, medical professionals, polio survivors, and anyone interested in PPS: for research and treatment issues, conferences, support group meetings, and other related topics.

• PPS Related Events, Seminars and Conferences

  http://www.skally.net/ppsc/event.html
  Calendar of non-commercial events concerning post-polio syndrome.

• PPS Survey

  http://www.skally.net/pps_survey/
  A survey for polio survivors with PPS

• San Diego Polio Survivors

  http://home.mindspring.com/~polio/
  Support group. Profile, activities, membership, calendar, photographs, contact information.

• Saskatchewan Awareness of Post Polio Inc.

  http://poliosask.org/
  Information on polio, post-polio syndrome, diagnosis, treatment, biographies, links to other resources, and equipment for the disabled.

• Why PPS Is So Hard To Understand-Bollenbach 1999

  http://www.skally.net/ppsc/und.html
  Description of muscle types, muscles indirectly affected by PPS, how PPS differs from ALS, immune vs autoimmune.

Related Categories

• Home > Health > Conditions and Diseases > Neurological Disorders > Neurodegenerative Diseases > Motor Neuron Disease

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