Directory of Personal Pages Resources

Home > Health > Conditions and Diseases > Genetic Disorders > Personal Pages

Subcategories

• Batten Disease
• Cystic Fibrosis
• Down Syndrome

Resources in This Category

• Ashly's Skeletal Dysplasia

  http://www.angelfire.com/or2/ashlysworldofwonders/about.html
  A mom describes her daughters disorder which is thought to be a metabolic disease similar to mucopolysachharisdoses. Also links to other related sites.

• Caleb's Courage

  http://www.youtube.com/watch?v=BFfYPSlKOTY
  Several videos about a baby's fight with MPSI-Hurler Syndrome.

• Daniel Raymond Wickman

  http://www.danielraymondwickman.weebly.com/
  Provides information about the chromosomal disorder, Trisomy 18. Includes a blog about the pregnancy, birth, and life of the author's son Daniel and links for support and education.

• In Balance with Arm Prosthesis

  http://sites.google.com/site/armprosthesis/
  Personal story of a woman with a congenital reduction defect of her right forearm and how she achieved her present balanced state.

• MCAD Angel

  http://mcadangel.com/
  Dedicated to raising awareness of the genetic disorder known as MCAD deficiency and the importance of early detection.

• Mowat-Wilson

  http://www.mowatwilson.org/
  Discussion site for mowat-wilson syndrome. Includes a links page, photos, a community page and a discussion area.

• Robert Kenneth Picklesimer

  http://www.picklesimers.com/robert_kenneth.html
  Born with Jeune Syndrome or Asphyxiating Thoracic Dystrophy in Louisville Kentucky. He underwent corrective surgery in San Antonio Texas, called the Titanium Rib Project.

• Trisomy 18 Angel

  http://www.trisomy18angel.com/
  In memory of Abigail Renee, to help other families who have been given a diagnosis of Trisomy 18.

Related Categories

• Home > Health > Resources > Personal Pages
• Home > Society > Disabled > Personal Pages

 

Home > Health > Conditions and Diseases > Genetic Disorders > Personal Pages

 

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