Directory of Barth Syndrome Resources

Barth Syndrome is a rare but serious genetic disorder that affects males.

Resources in This Category

Barth Syndrome Foundation

http://www.barthsyndrome.org/
Promotes knowledge about this disease among families, physicians and scientists, serving as a focal point for data and research for scientists. The group offers support to families learning to cope with the disorder.
NINDS - Barth Syndrome Information

http://www.ninds.nih.gov/disorders/barth/barth.htm
Information sheet compiled by the National Institute of Neurological Disorders and Stroke.
NORD: Barth Syndrome

http://www.rarediseases.org/search/rdbdetail_abstract.html?disname=Barth+Syndrome
Information on this rare, metabolic and neuromuscular genetic disorder provided by the National Organization for Rare Disorders.

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