Directory of Sturge-Weber Syndrome Resources

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Sturge-Weber Syndrome is composed of three major symptoms. Excessive blood vessel growths (leptomeningeal angiomas) are accompanied by accumulations of calcium inside the brain, and seizures. Facial birth marks (nevus flammeus) appear usually on one side of the face. Angiomas similar to those found in the brain can develop inside the eye, often with secondary glaucoma.

Resources in This Category

• NORD: Sturge Weber Syndrome

  http://www.rarediseases.org/search/rdbdetail_abstract.html?disname=Sturge+Weber+Syndrome
  Offers a list of synonyms, a general discussion and further resources.

• Sturge Weber Foundation UK/index

  http://www.sturgeweber.org.uk/
  Provides support and information about this condition for sufferers and their families. Includes information on epilepsy, port wine stains and glaucoma.

• Sturge-Weber Foundation (Canada)

  http://www.sturge-weber.ca/
  Provides information, support and education on Sturge-Weber syndrome, Klippel-Trenaunay Weber syndrome and port-wine stains.

• Sturge-Weber Syndrome Community

  http://swscommunity.org/
  Organization for individuals and families affected by SWS.

• The Sturge-Weber Foundation

  http://www.sturge-weber.org/
  Provides support to individuals with port wine birthmark related conditions. The Foundation acts as a clearing house for information and a focus for research.

Related Categories

• Home > Health > Conditions and Diseases > Rare Disorders
• Home > Health > Conditions and Diseases > Neurological Disorders > Neoplasms
• Home > Health > Conditions and Diseases > Genetic Disorders

 

Home > Health > Conditions and Diseases > Congenital Anomalies > Craniofacial Anomalies > Sturge-Weber Syndrome

 

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