Directory of Congenital Resources

Home > Health > Conditions and Diseases > Cardiovascular Disorders > Heart Disease > Congenital

Existing at birth. The word "defect" is more accurate then "disease". There is NO known cause for CHD. It is the #1 defect that a child can be born with and occurs in about 1% of live births.

Subcategories

• Cardiothoracic Surgery
• Personal Pages
• Support Groups

Resources in This Category

• Adult Congenital Heart Association

  http://www.achaheart.org/
  Information, resources and support for adults with congenital heart disease.

• CHD Awareness Day

  http://tchin.org/aware/
  The Children's Health Information Network has brought global attention to the dreaded problem of Congenital Heart Defects by a co-ordinated effort from parents and families of CHD victims.

• Congenital Heart Disease Information and Resources

  http://www.tchin.org/
  Interactive forums, Internet links, and peer-reviewed informational materials for families, adults with CHD, and health professionals.

• CongenitalHeartDefects.com

  http://www.congenitalheartdefects.com/
  Information, resources and support for families and individuals dealing with congenital heart defects. Definitions of CHDs and medical terms, list of support groups and hospitals.

• Coping with Congenital Heart Disease in Your Baby

  http://www.aafp.org/afp/1999/0401/p1867.html
  Article with some useful information, published by The American Academy of Family Physicians.

• Fontan Operation

  http://www.fontanoperation.com/fontan.htm
  Devoted to explaining this procedure, used to treat complex birth defects of the heart like hypoplastic right and left heart syndrome and single ventricle.

• Grown Up Congenital Heart Patients Association (GUCH)

  http://www.guch.org.uk/
  Provides support and advice to adults and teenagers born with CAD. Offers information sheets on topics such as pregnancy, insurance and careers, a message board and quarterly newsletter.

• HLHS Information

  http://hlhsinfo.homestead.com/
  Treatment options for newborns with Hypoplastic Left Heart Syndrome. Includes questions to ask the hospital, surgeon, and insurance company.

• MedicineNet: Congenital Heart Disease

  http://www.medicinenet.com/congenital_heart_disease/article.htm
  Detailed look at the causes, symptoms, types, and treatments.

• Merck Manual: Congenital Cardiovascular Anomalies

  http://www.merck.com/mmpe/sec19/ch287/ch287a.html
  Overview of congenital anomalies of the heart and blood vessels with information on a number of different birth defects.

• Our Little Braveheart

  http://members.tripod.com/stephandjake-ivil/braveheart/
  Jake was born with Tetralogy of Fallot. This is his story along with some pictures.

• Prenatal Diagnosis of Heart Problems

  http://www.fetalcardiology.co.uk/
  UK site on the diagnosis of defects in the unborn child, prior to birth. Details timing of scans, high risk groups, diagrams of cardiac conditions, and includes support groups.

• Resources from California State University

  http://www.csun.edu/~hcmth011/heart/
  Very list of congenital heart diseases with links to sites dealing with that particular disease. Information to help parents and provide support.

• The Charlie Ramsey Research Fund

  http://crrf.org.uk/
  Set up to raise money for research for complex congenital heart defects. Read Charlie's story, fund raising details, and new.

Related Categories

• Home > Health > Conditions and Diseases > Cardiovascular Disorders > Congenital Anomalies
• Home > Health > Conditions and Diseases > Chronic Illness

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