Directory of Retinoblastoma Resources

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A rare cancer of developing retina cells in babies and toddlers. Detectable by a standard eye exam, it is treatable if caught early but invariably fatal if it progresses to the optic nerve.

Resources in This Category

• ACOR: R-Blastoma

  http://listserv.acor.org/archives/r-blastoma.html
  Listserv for The Retinoblastoma Online Support Group. Includes mailing list and archived information.

• ACOR: RB-Survivors

  http://listserv.acor.org/archives/rb-survivors.html
  Mailing list and archives for the Retinoblastoma Survivors Support Group.

• Cancer.Net: Retinoblastoma

  http://www.cancer.net/cancer-types/retinoblastoma-childhood
  An American Society of Clinical Oncology related site that describes risk factors, symptoms, diagnosis, staging, and treatment of this condition.

• Childhood Eye Cancer Trust

  http://www.chect.org.uk/
  UK charity offers support and information on retinoblastoma to patients and families.

• Family Practice Notebook: Retinoblastoma

  http://www.fpnotebook.com/Eye/Hemeonc/Rtnblstm.htm
  Information in note form for clinicians.

• General Practice Notebook: Retinoblastoma

  http://www.gpnotebook.co.uk/simplepage.cfm?ID=1248526346
  Clinically-oriented information.

• Joey Bergsma Retinoblastoma Awareness Foundation

  http://lovejoey.com/
  Learn how to check all of your photographs for retinoblastoma (eye cancer).

• Merck Manual: Retinoblastoma

  http://www.merck.com/mmpe/sec19/ch285/ch285c.html
  Information on this type of intraocular tumor from an online textbook.

• Retinoblastoma - Bascom Palmer Eye Institute

  http://www.eyecancermd.org/retinoblastoma/
  Provides information and support for families coping with the diagnosis and treatment of retinoblastoma.

• Retinoblastoma - Histopathology

  http://www.mrcophth.com/pathology/retinoblastoma/retinoblastoma.html
  Clinician-oriented site with histopathological images of those with retinoblastoma.

• Retinoblastoma - St. Jude Children's Research Hospital

  http://www.stjude.org/stjude/v/index.jsp?vgnextoid=7cfb061585f70110VgnVCM1000001e0215acRCRD&vgnextchannel=bc4fbfe82e118010VgnVCM1000000e2015acRCRD&SearchUrl=search_results.jsp&QueryText=Retinoblastoma
  Concise description of factors, survival rates, and treatment strategies for retinoblastoma.

• Retinoblastoma in Children

  http://www.macmillan.org.uk/Cancerinformation/Cancertypes/Childrenscancers/Typesofchildrenscancers/Retinoblastoma.aspx
  Features information about causes, diagnosis, staging, treatment, clinical trials, and references.

• Retinoblastoma International

  http://www.retinoblastoma.net/
  Information about the disease aimed at parents and professionals. Lobbies for early eye exams in newborns.

• Retinoblastoma of Arizona

  http://rbaz.org/
  RBAZ is aimed at Arizona families who have an affected child. Provides information, support, guidance, and gatherings.

• Retinoblastoma.Ca

  http://www.retinoblastoma.ca/
  Canadian resource which is treatment oriented.

• Retinoblastoma: Treatment Statement

  http://www.meb.uni-bonn.de/cancer.gov/CDR0000062846.html#REF_1
  Provides a review using NCI materials of the prognosis, classification and treatment of the tumor. Aimed at the professional level.

• ‘White glow’ in babies’ eyes a possible cancer warning

  http://www.bbc.co.uk/news/health-13296440
  The BBC reports that the most common sign of retinoblastoma is a white glow in the pupil of the eye, which can look like a ‘cat’s eye’ in a photograph, especially when there is a ‘red eye’ look in the other.

Related Categories

• Home > Health > Child Health > Conditions and Diseases > Cancer
• Home > Health > Conditions and Diseases > Eye Disorders
• Home > Health > Conditions and Diseases > Genetic Disorders
• Home > Health > Conditions and Diseases > Rare Disorders

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