Directory of Blood Disorders Resources

Subcategories

Central New York Bleeding Disorders Association

http://www.cnybleeders.8m.com/
Gives information about the CNYBDA, about the disorders, and resources. Also provides details on how to become a member.
Cryoglobulinemia

http://dynamics.org/~altenber/cryo/
Types I, II, II, treatment and information, cryofiltration apheresis.
NHLBI

http://www.nhlbi.nih.gov/health/public/blood/index.htm
Information and resources on blood from the National Heart, Lung and Blood Institute. Provides links on publications, fact sheets, and related diseases information.
NHS Choices: Rhesus Disease

http://www.nhs.uk/conditions/Rhesus-disease/
Provides information on this condition where antibodies in a pregnant woman’s blood attack her baby's blood cells.
Project Red Flag

http://www.hemophilia.org/Community-Resources/Women-with-Bleeding-Disorders/Victory-for-Women-with-Blood-Disorders
The National Hemophilia Foundation’s (NHF) public awareness campaign to reach women with undiagnosed bleeding disorders.
XLP or Ducans Disease Resource Site

http://www.teamhartley.co.uk/
X-linked Lymphoproliferative Syndrome (XLP) or Duncans syndrome. A family site with resources and news for 4 sons who suffer from this disease.
XLP: X-Linked Lymphoproliferative Disorder

http://www.xlp.ca/
Explains this rare condition which affects only males. Includes personal accounts and offers contact information for sufferers.

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