Directory of Fabry's Resources

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Resources in This Category

• eMedicine: Fabry Disease

  http://emedicine.medscape.com/article/1952086-overview
  University of Texas MD describes symptoms, treatment, and prognosis for patients suffering with this rare but severe lysosomal disorder.

• Fabrazyme - A Treatment for Fabry Disease

  http://www.fabrazyme.com/
  This web site is intended for use by European physicians only. You must log-in to use this site.

• Fabry Community

  http://www.fabrycommunity.com/
  Provides information and support for people with Fabry disease, their caregivers and families, and their health care providers.

• Fabry Disease

  http://www.ninds.nih.gov/disorders/fabrys/fabrys.htm
  Information sheet on this disease including treatment, prognosis and research.

• Fabry Disease Registry

  http://www.fabryregistry.com/
  Information about an ongoing observational database that tracks the natural history and clinical outcomes of patients with this disease.

• Fabry Support and Information Group

  http://www.fabry.org/
  Information about the group and this disease. Join the group free of charge and receive a newsletter.

Related Categories

• Home > Health > Conditions and Diseases > Rare Disorders

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