Home > Health > Conditions and Diseases > Neurological Disorders > Spinal Cord > Spinocerebellar Degenerations > Friedreich's Ataxia
An autosomal recessive disease, usually of childhood onset, characterized pathologically by degeneration of the spinocerebellar tracts, posterior columns, and to a lesser extent the corticospinal tracts.
http://cajunheart.tripod.com/
Kim Bourg describes her life with the condition, and suggests strategies for coping with it in oneself or others. Includes details of symptoms and diagnosis.
http://www.fara.org.au/
Summarises recent progress in ataxia research and the search for better treatment.
http://www.ninds.nih.gov/disorders/friedreichs_ataxia/detail_friedreichs_ataxia.htm
A resources guide and fact sheet compiled by NINDS, the National Institute of Neurological Disorders and Stroke.
http://www.ataxia.ie/
Voluntary organisation providing support to anyone affected by genetic ataxias. Includes events calendar, membership details, and information on accessibility issues.
http://www.matthewlaw.co.uk/
Describes his life with the condition, and his travels in a wheelchair. Includes information for any disabled person considering foreign travel.
http://www.rarediseases.org/search/rdbdetail_abstract.html?disname=Ataxia,+Friedreich's
Offers the synonyms, a general discussion and further resources.
http://www.notgoingquietly.com/
A personal account of diagnosis, daily life, challenges, and international travel. Includes details of treatments, and a photograph gallery.
http://news.bbc.co.uk/2/hi/health/5257252.stm
The BBC reports that a man with Friedreich's ataxia has lost the last stage of his legal fight to insist on his being fed artificially in the final stages of his life.
Home > Health > Conditions and Diseases > Neurological Disorders > Spinal Cord > Spinocerebellar Degenerations > Friedreich's Ataxia
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