Directory of Huntington's Disease Resources

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Subcategories

• Support Groups

Resources in This Category

• Australian Huntington's Disease Association (NSW) Inc.

  http://www.huntingtonsnsw.org.au/
  Offers support for families living in the Australian states of New South Wales and the Australian Capital Territory. Includes resources and information about NSW.

• Caring for People with Huntington's Disease

  http://www.kumc.edu/hospital/huntingtons/
  Information about caring for people with Huntington's disease, for patients, families and professionals.

• Centre for Huntington Disease

  http://www.cmmt.ubc.ca/outreach/hd-clinic
  The clinic provides care from several perspectives for individuals with Huntington Disease (HD) as well as their families. Based at the University of British Columbia, Vancouver, Canada.

• CureHD Foundation

  http://www.curehd.org/
  A charity site aiming to spread awareness, information, and news about Huntington's disease.

• eMedicine Health - Huntington Disease Dementia

  http://www.emedicinehealth.com/huntington_disease_dementia/article_em.htm
  Consumer health resource center providing information on the causes, symptoms, and treatment.

• Heather's Huntington's Disease Page

  http://heatherdugdale.angelfire.com/
  Features a weblog, care giving tips, ways to fight brain fog, myths, the author's story, families’ story, poetry, and ways to have a positive testing experience.

• Huntington Study Group

  http://huntingtonstudygroup.org/
  Coordinates and provides enrollment for drug trials across United States, Canada, Europe and Australia.

• Huntington's Disease

  http://www.ninds.nih.gov/disorders/huntington/huntington.htm
  An information sheet compiled by NINDS, the National Institute of Neurological Disorders and Stroke. Includes links to NIH recruitment for drug trials and detailed information about HD.

• Huntington's Disease Association UK

  http://www.hda.org.uk/
  Supports people affected by the disease and provides information and advice to professionals.

• Huntington's Disease Information

  http://www.renettedavis.com/hd.html
  A resource on Huntington's disease.

• Huntington's Disease Lighthouse Families

  http://www.hdlf.org/
  Current information on treatments, drugs, support and patient resources.

• Huntington's Disease Society of America

  http://www.hdsa.org/
  Research, assistance, and education.

• Huntingtons Queensland

  http://www.huntingtonsqld.org.au/
  Gives disease information, services available in Queensland Australia and links.

• International Huntington Association

  http://www.huntington-assoc.com/
  Federation of national voluntary health agencies.

• Juvenile HD

  http://endoflifecare.tripod.com/juvenilehuntingtonsdisease/
  Information for families with a child with juvenile HD or one at-risk. Includes at-risk, genetic testing/testing of children, related JHD and HD symptoms and how to recognize/help, types of therapies, various medication and drug searches, surgeries, procedures used in testing, suicide, divorce, disabilities, assistive technology, support links, and benefits/insurance.

Related Categories

• Home > Health > Conditions and Diseases > Neurological Disorders > Brain Diseases > Basal Ganglia
• Home > Health > Conditions and Diseases > Genetic Disorders
• Home > Health > Conditions and Diseases > Rare Disorders

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