Directory of Marfan Syndrome Resources

Home > Health > Conditions and Diseases > Musculoskeletal Disorders > Connective Tissue > Marfan Syndrome

Marfan Syndrome is an inherited disorder of connective tissue which affects many organ systems including the skeleton, lungs, eyes, heart and blood vessels.

Resources in This Category

• Canadian Marfan Association

  http://www.marfan.ca/
  Information, articles, events, a patient survey, and products. Also includes an article on Pharaoh Akhenaten who was believe to have the disease.

• GeneReviews: Marfan Syndrome

  http://www.ncbi.nlm.nih.gov/books/NBK1335/
  Summary, diagnosis, clinical description, differential diagnosis, management, genetic counseling and molecular genetics.

• International Federation of Marfan Syndrome Organizations

  http://www.marfanworld.org/
  A global information center providing links to Organizations around the world.

• Living With Marfans

  http://jrmarfan58.com/
  This site is an in depth look into the life of someone who has Marfan Syndrome and what they have learned along the way.

• Marfan Syndrome

  http://www.ygyh.org/marfan/whatisit.htm
  A guide to this connective tissue disease.

• Marfan Syndrome

  http://emedicine.medscape.com/article/946315-overview
  Article from eMedicine.

• Marfan Syndrome

  http://www.medicinenet.com/marfan_syndrome/article.htm
  A Question-Answer format page of information.

• Marfan Syndrome: Does Diet Play a Role

  http://www.ctds.info/marfan.html
  Explores the idea that the disease is affected not by the fibrillin gene, but by one's diet.

• Marfans Research Foundation

  http://www.marfansresearchfoundation.ie/
  Irish charity with information on fund raising activities and the condition.

• MFS Type 1 Fibrillin Gene

  http://omim.org/entry/154700
  Major resources listed as well as genetic information.

• National Marfan Foundation

  http://www.marfan.org/
  Providing accurate and timely information about the disorder to patients, family members and physicians.

• NHS Choices: Marfan Syndrome

  http://www.nhs.uk/conditions/Marfan-syndrome/
  Provides information on this inherited condition that affects the body's connective tissues. Includes details of symptoms, causes, diagnosis and treatment.

• Questions and Answers about Marfan Syndrome

  http://www.niams.nih.gov/Health_Info/Marfan_Syndrome/default.asp
  From the National Institutes of Health.

• Slovak Marfan Association

  http://marfan.szm.sk/
  The association provides a network of patients, relatives and doctors in Slovakia, informs and helps patients to improve the medical care.

• South African Marfan Syndrome Organisation

  http://www.marfan.org.za/
  Information in English and Afrikaans,including an interactive diagnosis tool that allows for an accurate diagnosis.

• The engineer who fixed his own heart and others too

  http://www.bbc.co.uk/news/health-24524027
  The BBC reports on Tal Golesworthy, who didn’t like the available treatments for Marfan, so did better.

• The Marfan Syndrome

  http://www.angelfire.com/ms2/CysticFibrosisMarfan/standingtall.html
  A diary of the disease events in the life of someone with this condition. Includes a list of links.

• The Mystery of Akhenaten: Genetics or Aesthetics?

  http://www.heptune.com/Marfans.html
  A history of the pharaoh along with theories applied to what he may have had, including Marfan's.

Related Categories

• Home > Health > Conditions and Diseases > Musculoskeletal Disorders > Connective Tissue > Hypermobility Syndrome
• Home > Health > Conditions and Diseases > Musculoskeletal Disorders > Connective Tissue > Ehlers-Danlos Syndrome

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